LS Lichen Sclerosus and Borax – Update

2 years ago I wrote one of the hardest blogs I had ever written. Yes, much harder than telling you about my breast cancer!

It was about having Lichen Sclerosus – and finding something that actually helped – something that didn’t cure (it is incurable) – but did alleviate the very distressing symptoms.

If you have never heard about LS – then you are lucky! It isn’t something you tend to hear about until the doctor tells you that the excruciating pain from the thin broken skin, the swelling, the pain and the terrible itching, is due to LS … and all they can give you is a steroid cream – that thins the skin!

So, what is Lichen sclerosus / sclerosis? It is believed to be an auto-immune condition that affects mainly post-menopausal women and children, but also some men. As I am sure you know, an auto-immune condition is one in which your own body turns on itself, destroying cells, and in this case making the skin thinner, prone to tearing or splitting, blistering, swelling, soreness, irritation and chronic inflammation. It also makes white patches on the skin – hence the name – but that’s the least of your worries. However, it isn’t infectious at all.

Lichen sclerosus also has a favourite location for this disruption of the skin – and this is why I (and many other people) don’t generally like to talk about it. It affects the skin between the buttocks and reaching forward to include the delicate skin all around and of the vulva. In people who have had it for decades it can even result in atrophy of the flesh.

  • This blog post ‘Lichen Sclerosus and why Borax is my new best friend’ has been the most visited – the most commented on – and the one that I have received most direct email about since I began my blog nearly nine years ago! And WHY? Because there are SO MANY women – and some men – all over the world who suffer from this – and are desperately seeking some way to alleviate the pain. (I’ve since found that there are FB pages for LS suffers and it is full of thousands, some with horrific results of their affliction – see end for links)

Only last night I had another email – from a lady in the USA saying she’d found my blog – and was the borax therapy still working for me? and could I give her a link to the borax that would work in the USA? I will reply – as I have to the many, many others who have not wanted to use the open comments section, and who are just happy to find someone to talk to who understands.

So, today – almost 2 years from that first blog – I am doing an update.

The borax therapy is still working for me!

Last summer I sent out a little questionnaire to people who’d commented or contacted me about LS – hoping to create an overview of what people had found worked. How many had found the borax therapy worked for them – and how many hadn’t – what else they had tried – what had failed, what had worked. Unfortunately just a low percentage replied. It may be that the emails addresses they used were not valid any more, or temporary, or my email fell into a junk box – but the overview didn’t garner enough stats to be meaningful. However, generally, those who did reply said the borax therapy had helped – if not taking away the symptoms altogether – it had eased the problem. A few said it worked – then after some stressful time it stopped working. At least one of these I suggested starting the therapy again from the high-dose intake … and it started working for them again. A re-boot any time after 3 months from the original start is ok and seems to help when other factors have exacerbated the condition (and stress does seem to).

So I have to say that the Borax therapy doesn’t seem to work for everyone – our bodies are very complex organisms and no treatment works the same for everyone – but it does work for a good number of people.

What I can say from my own experience is that, if you have been diagnosed with LS, try the borax and bicarb bathing – combined with taking magnesium glycinate (or another bio-available form of magnesium) at half the daily recommended dose. This is very safe and easy to try – and if this works for you – eases your symptoms a little – then trying the full therapy may well work for you too… and clear-up and keep those very nasty symptoms at bay.

Having said that, and acknowledging that picking the ‘therapy’ out of the story of my LS in my earlier post isn’t clear or easy, I’m now setting the therapy out as I tried it in a step-by-step clearer manner here.
But please note: I am not a doctor – I speak only from my own experience – please do your own research too.

The Borax therapy

The Bath: TRY this first! In a normal sized bath, put 1 tablespoon of Borax (Sodium Tetraborate) and 1 tablespoon of bicarbonate of soda, run hot water and stir to dissolve – cool to comfortable temperature and to make a bath of about 8 – 10 inches deep (20 – 25 cm) – to cover affected parts of your body. Soak about 10 mins or more. [A little borax will be absorbed transdermally too]

Every daytake a bio-available magnesium supplement (half the daily recommended dose – the rest you will get from your food)
I suggest magnesium glycinate as bio-available and without of the side effects of magnesium citrate. As the borax needs the magnesium to work effectively and it helps balance hormones.

The ‘cream’: This is something I made up myself – as the lack of ‘slip’ once I stopped using the steroid cream meant just the skin touching skin was painful when walking or sitting.
2 rounded tablespoons of coconut oil (which is a solid at room temp) melted in a small lidded oven-proof glass bowl in the microwave, watching it carefully – it needs to get hot to dissolve the borax)
Mixed into it 1 level teaspoon of bicarbonate of soda, 1 level teaspoon of Borax – stirring constantly as it cools.
Before it solidifies but after the oil has cooled a bit  Add 3 drops of lavender oil (essential oil) and pour into a container, with a lid, for keeping.
This then sets to a hard ‘cream’ (at UK temperatures) – so I scrape off a little and let it melt on my skin providing the lubrication on the sore skin with the soothing qualities of the other ingredients. You may find small bits of borax that do not dissolve fully, but as this melts, you can push these aside and remove.
OR use just a little coconut oil – or a moisturiser that is all organic and does not contain petrol-based ingredients.

If these help … carry on with these and try the following…

The Internal Borax therapy: This is not mine – I found it online and it is the regime I followed: and what made my symptoms go away!! (Read about my journey here and find a link to the original post that I followed)
Taking borax in solution every day for a fortnight (I did 16 days)
One eighth of a level teaspoon of borax to be taken everyday, dissolved in one litre of (warm) spring water – consumed over the day.
Measure one level teaspoon of borax – divide into quarters, then each again in half to give you eighths    Put each 1/8th in a twist of cling film or similar. Do this twice to give you 16 small packets.
Each day dissolve one small packet in a little warmed spring water, top up to 1 litre with cold and put in the fridge. Drink the whole amount over the day.
Do this everyday for at least 14 days (no more than 16)
Don’t forget the magnesium supplement!

LOW maintenance dose internal borax therapy.
When you have completed the full dose borax therapy, and it has helped the problem, then you need to follow it up by a life-time of a much lower dose of borax (maintenance dose) –  every day – forever – and the mandatory taking of a magnesium supplement always.

Maintenance Solution recipe:
1 rounded teaspoon of Borax dissolved in 1 litre of boiled water, kept in refrigerator.
1 – 2 teaspoons only of this maintenance solution taken everyday … forever. (I usually put it in another drink – eg, morning orange juice ) 

Vitamin D3:
I would really recommend taking Vitamin D3 – especially between October and May in the UK* – as that is the time the sun is too weak to make vit D via your skin. Why? Because Vitamin D3 is important to maintaining skin integrity – and if you are an LS sufferer you skin needs all the help it can get to repair and maintain itself.
*check the sun strength details for where-ever you live – I was surprised to see that even in California the sun wasn’t strong enough all year

LINKS to help you:
Borax: in the UK Under £6  a kilo – REIDS UK. They also do large quantities of Bicarbonate of soda.
In the USA & Canada – Buy 20 Mule Team Borax from your laundry aisle – make sure it doesn’t have perfume or any other additives.
Magnesium glycinate These are the best suppliers I’ve found in UK for magnesium glycinate (click here) Click into the bit marked ‘offers’ next to ‘description’ – you can often get 3 for price of 2 as well. (note Supermarkets usually sell magnesium oxide – this is NO good as is not really bio-available magnesium) 

The other big question I get asked is – Is it safe to take borax?
This because it is, in very large doses, a poison. But then – so is table salt! In fact the levels of table salt and the levels of borax needed to poison you are very similar. The doses in this therapy are very, very small as long as you follow the measurements and the quantities taken exactly. Do not think ‘double the dose will work twice as quickly’ – it won’t!
And, use common sense – if you experience odd symptoms – stop – or lower the dose for a while. Having said that – a couple of people have said the first week they had looser stools than usual – but that’s not too odd and it only lasted for the first week.
As with all chemicals – keep the borax safely, where children can’t get hold of it!

Borax, also known as sodium borate, sodium tetraborate, or disodium tetraborate, is an natural mineral and an important boron compound.
If you have a scientific leaning and want to know more about the active ingredient of Borax do read this [Nothing Boring about Boron] it is a proper scientific paper – but, I think, accessible if you’re into science, and is Fascinating! Do read.

That’s about it …
I still put borax and bicarb in a bath – but in a full bath now, not just for treatment. I use Borax and Bicarb to wash my hair (See this blog-post) and I take the borax maintenance dose, the magnesium and the vitamin D3. I also try to eat a healthy omnivorous diet high in vegetables, fermented foods (like home-made yoghurt, kombucha, sauerkraut), nuts and omega3 oils, but low in carbs, (especially low in gluten-bearing carbs for reasons see this blog-post here) and try to exercise regularly.
I don’t think that the LS-affected skin will ever be as robust as it was pre-LS (due to the thinning caused by LS and the steroid cream), and I did suffer some fusing that won’t ever undo, because it went on so long before I tried the borax – but at least the skin is no longer so fragile that it splits, not swollen, not blistered, not unbearably itchy, not still fusing more and not sore all the time. This is a blessing.

So – there’s my update.
Did I miss anything out that you want to know?
Do ask in the comments or by email (see below)
Is there anything you’d like to share?
Thank you – as ever – for reading
– best Ann

Here are two facebook support groups that have reached out to me since this blog-post – both have members from all over and both provide great support – but the UK one probably helps more those in the UK and EU with questions about Borax and where to get it … and the US one probably has more members maybe more experience and support . I’ve now joined both.

US LS facebook group – covers the world…
UK LS facebook group

ps If you are reading this on email and would like to comment just click onto the title and it will take you to the actual blog – so you can comment there
If it is the first time you have written a comment don’t worry if it doesn’t appear immediately, your first comment has to be verified (to keep the spam-bots out) and I do this personally – so I am sure to see your comment – thanks for reading – Ann

Remember – reviews of books are a great way to say ‘thank you’ to an author if you like what they write,
  Thank You

If you wish to keep it private – about LS and just contact me then just reply to the email this arrived on (or if you have found this on the internet then email ann@ annfoweraker .com (closing-up the gaps) – otherwise go to the actual page and click comments to add you. 
NOTE: I am not a doctor – I speak only from my own experience – please do your own research too 🙂

Sharing:

49 thoughts on “LS Lichen Sclerosus and Borax – Update

  1. I have found the bath makes the area more sensitive. I have also found that Emu Oil is helpful. My LS at the moment isn’t what they call “active” but it is always there and irritable. I have Borax 5 days at 1/8 tsp per 1 ltr of spring water and 2 days off. It is the most distressing condition and can really wear you down.

    • Hi Kay,
      Interesting that the bathing makes it more sensitive for you – for most this seems to help. Maybe try using only borax – no bicarb? I see you are taking the high dose all the time – albeit with two days off. Have you tried going on to the maintenance dose at all? Emu Oil has been mentioned by a few people in the comments on the original blog. I suppose this help with keeping the skin moisturised too, so it does not rub.
      Oh and yes … very wearing … when every tenderness or irritation in the area makes you think it is going to flare up and bring the misery back – as we know whatever we find isn’t a cure – just a way to keep the symptoms at bay.
      Hope it stays ‘inactive’ for you
      Best Ann

  2. Ann, I read your original article about a year ago. The one about LS and borax. It changed my life. I had been suffering for 7 years with horrible LS symptoms. I had been given the steroid cream by my doctor and I used it for a little bit, but it made me worse and burned my vulva and gave me blisters. For 7 years I didn’t know what to do. I tried Vitamin E oil and tea tree oil, but it wasn’t really helping as much as I wanted. I finally stumbled across your article and the borax was AMAZING!! It completely healed up my symptoms. I also take the magnesium and Vitamin D and drink a borax solution like you suggested. The best advice I ever took. Thanks so much!!

    • Hi Allicia!!
      How good to hear from you! THIS, This is why I went public with my LS and what I had found worked … embarrassing or not – if another person doesn’t have to suffer then it was worth it!
      Thank you – and by commenting here you are helping to let others know too!
      Best wishes for a LS symptom-free future
      xx Ann

  3. Hi Allicia, Thank you for showing me how you are sharing information about LS … and borax.
    SO MANY ladies in your FB group! Plus me too now! 🙂
    I have made your FB page name into a live link – so that any ladies** who want to have the support of knowing that they are not alone in with this terrible condition, and help and advice, can just click to take them to your page.
    Best
    Ann
    **(Allicia’s is a page for female sufferers only – apparently there are other pages for male LS sufferers)

    • Hi Connie,
      If you are suffering from LS then I suggest you try a borax therapy . . I’ve laid out in the blog how it helped me, start with a bath. Alicia (in the comments) runs a support fb page, joining that that may help too.
      Hope it helps you as it did me.
      Best
      Ann

  4. Hi Ann
    Thanks for sharing and blogging about LS and borax. It all helps raise awareness and so many women (and men) are suffering with years of misdiagnosis. If any of your readers are in the UK or Europe and they want some ideas of what moisturisers, balms and soaks others have used and made, please do come and join my LS Facebook group. https://www.facebook.com/groups/LSNaturalHealingUK/
    There is a lot of collective experience in the group.

    • Hi Jacqueline,
      Yes, there certainly is a lot of collective experience on your LS facebook page – we are truly not alone with this! I have now joined – and put your group as a link at the end of this blog.
      thanks – best Ann

  5. Hi Ann
    I have made myself a borax bicarb coconut oil cream a few times but always find the borax and bicarb separate from the coconut oil which rises to the top. Also the mixture is always grainy with the borax and bicarb not completely dissolving. Would really appreciate any tips if you have had the same issues?

    • Hi Angie,
      I suspect that the coconut oil isn’t hot enough to start with. It needs to be quite hot to dissolve the borax (though there will be a little borax that remains as crystals) Then it is important to keep stirring the whole time that the coconut oil is cooling. When thickening add the drops of lavender oil – stirring well. Then pour into the pot to keep it in – and keep stirring until too thick to stir. If this is what you have been doing already then i am not sure why it is separating … if not – please see if this works. Do look at the two facebook groups I have just joined (links at the end of the LS update blog) – some of them have ideas for creams and lotions that work to ease the problem too.
      hope this helps
      best
      Ann

    • Hi Julie,
      If you look in the blog above, under Links to help you, the words ‘Reid’s and the price’ is a direct link to where I buy my borax, via eBay, in the UK.
      In the section higher up I say how much I used in a shallow bath – just deep enough to cover relevant areas (1tablespoon of borax, one of bicarbonate) I haven’t used a ‘sitz’ bath, the type you can put over a loo, but as the water quantity is so much less, I’d start with a heaped teaspoon of each. . .and increase it if there’s no irritation. You could also join one or both of the fb groups at the end of this blog post. Many of the ladies on that use the ‘sitz’ baths, all are sympathetic and between them there is a vast amount of information.
      Hope this helps,
      Best
      Ann

  6. Ann, Thank you so much for your information. I was recomemmended by my Pelvic floor Phycial Therapy to try the Borax treatment. I did a search and found your wonderful information. I am look forward to see the results of the treatment.
    Doreen

    • Hi Doreen,
      I am heartened that a health professional suggested looking at borax! I hope it works for you as it did for me. If you want to know that you are not alone in this do join the FB groups, linked at the end of my blog post, there you’ll find lots more support and ideas for ways of using borax to help healing and suppress symptoms.
      Wishing you all the best – Ann

  7. Hi, I am in Australia and very keen to try the Borax but can only find very cheap packets in the hardware gardening section, or cleaning section of the supermarket, it says they are made in China. I have googled and it appears Borax is mined in US, California and Turkey.. very expensive to get sent to Australia. Is all Borax the same? Would appreciate your opinion. Thanks.

    • HI Gillian,
      In essence all borax is the same when it comes out of the ground. All you have to be careful of is that it hasn’t had other stuff added as packaged. Does the borax you have found say Made in China – or packaged in China – I wonder? It ought to say it is 99% (or even 99.9% pure borax). I do not know Australia well enough to know where or what brand to buy – but I know where you can find out! Join the US facebook page – which has members from all over the world – including Australia.
      https://www.facebook.com/groups/159110331571638/
      Link above at the end of the blog if this one doesn’t work, or copy and paste it.
      Allicia has asked people in that closed (private) FB group for recommendations of where to buy borax – and I’m sure some Australians have replied. It is in a long post under Announcements.
      If you do not ‘do’ facebook (as so many choose not to) sign up just for this – you can use a nickname – you can ignore all their pleas to link up with people you might know – and just use it to join this group and find the great support in this condition.
      Hope this helps
      Best
      Ann

  8. omg! thank you sooo much, just had my first bath with the mixture, already feeling better. i thought i was going crazy. i was seen 3 times in urgent care, once by derm, and twice by gyn, who finally took a biopsy. my question is, Do you have to spread the orol dose over the day, or can i drink it all at once, or maybe half in morn, half in eve?

    • Hi Liz,
      So glad you found the borax bath good!! Sounds like you’ve been through the wars with this!
      It is recommended to space the litre out over the day. I would say at least into 4, breakfast, lunch, tea and supper time perhaps? Maybe you could drink some at elevenses, afternoon tea or coffee too – making it into 6? I found it was easier to take it when I was eating or drinking something else – like a reminder. Also, some people say they can taste it * … and if this is you, then the ‘other thing’ you are eating or drinking will take any taste away. *I didn’t particularly notice it myself. !And don’t forget to take magnesium too!
      Hope it works for you as well as it did for me. Do keep in touch 🙂
      Best
      Ann

  9. Hi Ann,
    Thank you so much for your very candid and helpful blog. My Borax arrived yesterday and today I am starting the Borax experiment…. hope it works as the itching is driving me to insanity!!!!
    Also, I was a little anxious about the oral solution, mainly because I can’t be sure of the quality of the Borax that we can by via the internet and when I started researching the Magnesium vitamin supplements, I came across a vitamin that includes Magnesium, Boron (Borax), Vitamin D, Zinc and others, all in a chewable tablet… this is readily available and at a very reasonable price of £5.60. I have just purchased it from Boots . Early days, I have no idea if it will work, but just wanted to share. The tablets are from Vitabiotics, Osteocare Chewable.
    Once again, thank you for your posts.
    Hellen

    • Hi Helen,
      Interesting, do let me know how you get on. Is the ingredient listed as boron or as borax (there are different chemical formulations on of the same mineral, but there is a difference in action)
      As for the quality of the borax. ..
      Where did you get you borax from on the internet? What does feel like to touch and what does it say on the label?
      Looking forward to hearing from you
      X
      Ann

  10. Hello! Thank you for your original post on LS and for this follow-up. I have a question-do you use actual Borax and not medical grade borate? Dies it matter?

    • Hi May,
      From what I have read, borax as mined is 99% pure sodium tetraborate, the 1% being harmless minerals, and this is what I use. By all means if you feel happier buying medical grade do so, but I would still use standard 20mule team in a bath.
      Hope this helps
      Best Ann

  11. Hi Ann,
    Thank you for all your carefully documented info re borax treatments. Unfortunately I’m a long term sufferer, with deep skin cracking flare ups. 🙁
    I want to buy the borax & start treatments but found this alarming article today… please comment as is it just fear mongering re making such a big case for its potential “toxicity” ? Thank you 🙏
    https://www.medicalnewstoday.com/articles/324167.php
    L-Jean

    • Hi L-Jean,
      I fear this article has taken an extreme view, and they only cite two scientific papers in support of their view. Please read this paper (which is supported by many references and from a government approved source)
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4712861/
      I will also add that Sodium tetraborate is one of the main ingredients in contact lens fluid. Yes. . .it is safe enough to put in your eyes.
      I agree that borax (and any other household chemical) should be kept safely away from children, especially at the age when they might try anything. But, on the same grounds you should also keep quantities of table or cooking salt away from young children. . .as this is also toxic to them!
      If you are soaking . . .the amount you will absorb is quite small. . .if you are ingesting, (strictly to the rules) the amount you are taking is considered safe for adults. And the maintenance does only meets the recommended requirements for boron for your body to function properly.
      You say you are a long term sufferer . . .I empathise, and sympathise. . .and suggest you try the baths, and taking magnesium glycinate, and moisturise with coconut oil. ..and see how it goes. I only hope it helps you as much as it did me. . .and if you are concerned about ingesting the higher dose, just do the maintenance dose. Plenty of people have found this works too. . .it just takes longer.
      Best Ann.

  12. Hi gang,
    Thank you for all the research and advice, ready to try anything after 3 short ( by comparison to others) but gruelling years. Finding the bathing very soothing so far. The oral solution is easy to make and take and I’m taking the supplements. However, as I have a small raw area, I’m finding the cream to sting on contact. This goes after several minutes. What would you suggest? Would it be best to use coconut oil alone until the sore heals over? I’m praying it does. I wish all the readers well in their struggle. So sad to see so many people fighting autoimmune illness, hard to stay encouraged when you see the numbers. Lovely to see so many are finding relief, keep up the good work, I will stay in touch. Warm thoughts,
    Effie ( Australia)
    P.S. I purchased my Borax from a company called Blants, their website is http://www.blants.com.au, I believe they are a NZ company, shipping to Sydney was very reasonable and quality of the Borax is excellent.

    • Hi Effie,
      So glad you have found relief this way!
      As for the sore area – hopefully it will go soon, but if the mix stings too much – just try the coconut oil on its own – it is anti-microbial in itself.
      If you join the US healing LS through borax FB group you’ll see that many recommend stuff I’ve no experience of – emuaid being one that sticks in my mind – but they say it is good for really sore areas and all natural. I can only speak from my own experience – yet I went public as no, or few, others were out there – so these remedies were hard to find. I am just so glad it has helped some to find relief!
      Love to hear from you when it clears up 🙂
      Ann

  13. Hello Ann,

    Thank you for your wonderful information regarding borax. I am too a LS sufferer and yesterday was my fist day of borax taken internally. I made a concentrated borax and sodium bicarbonate yesterday and applied it on my vulva. Unfortunately it irritated my skin to the the point that I can see raw skin underneath my clitoris. Now I need to wait a few days to heal in order to try again the local treatment but next time I will try a much less concentration and I am thinking of using only borax. What is your suggestion about the concentrate? I have heard that this is a good way to resolve the fusing problem which is a big problem for me. Here is the page I found this information from: https://myvagina.com/using-borax-reverse-fusing-lichen-sclerosus/
    Another question I have for you: How often should I have the borax bath now. Everyday? Every other day? and do you still need to bathe in borax solution regularly even if you don’t have symptoms anymore. This is not clear to me.
    Thank you so much.

    • Hi Mihaela,
      I think going straight to the very concentrated solution applied directly may have been a bit of a shock for your skin. Personally, I’d have done some baths first, increasing the amount of borax in them over the week, before trying the concentrated solution direct.
      Having said that, unfusing also manifests itself as raw skin where it has come apart. Only you can tell whether this is general soreness or only where stuck skin has parted.
      Initially, if you are ingesting already(drinking the specific small dose of borax solution), I would recommend bathing, in a shallow bath, enough to cover affected areas, once a day, followed by moisturising.
      I have been in remission for two and a half years now. I bath in borax about once in ten days, (showering the rest of the time) but when I wash my hair too, I use borax, so it runs all over my body, and I always make sure I wash the affected areas with it
      If you do Facebook, do join the U.S. fb group I have put a link to at the end of my Update blog. Alicia, who runs it, has lots of good protocols under Announcements.
      Hope this helps
      X Ann

  14. Hi Ann,

    Thank you so much for your message. You are so inspiring to me and I have so much more hope now. I thought that I am not going to continue using borax locally but I am now optimistic that if I increase the dose gradually and starting with the baths first, probably soon I will tolerate the saturated solution to help with the fusing issue, too. Have you ever tried the saturated solution for the fusing, since I guess the bath will not help with that too much and for me that was just very exciting to hear women unfusing their labia minora with this saturated borax solution. I want to do both the bath and the saturated solution to address all the issues I have for many years now. That’s a promise. And, yes, I think that the raw skin I got actually was the unfusing of one small part of my labia minora. You must be right. How do you wash your hair with borax? Can you tell me more about this. Thanks so much for your help. God Bless!

  15. Hi Ann,

    Thanks so much for the info about the borax shampoo. I will definitely look into this, too. I have just recently discovered borax and I am amazed to see how helpful it is for keeping us healthy. It’s encouraging to know that from just bathing you can experience unfusing. It takes longer I guess but it is a much more gentle approach. I will try the baths and cannot wait to see good results for myself too. Thanks, again!

  16. Hello Ann,

    What hope you have given me. I am so thankful to find your article and also to know there are others out there who suffer. I have struggled with the symptoms off and on for almost 5 years (progressively getting worse) Finally in April I was diagnosed after seeing 5 plus doctors. The steroid cream has given some relief, but it just keeps things at bay, but not healed. I took my first borax/baking soda bath today. And will see how things go. I was curious if taking boron would be an option as opposed the borax? I am willing to try anything to help relieve the symptoms and keep it under control. My doctor is suggesting I take Methotrexate which can cause harm to the liver. I just feel like that would/should be a last resort. I am looking forward to trying some of the things that have worked for you. I will also be joining the FB group. More experience and support would be great! And last but not least, Thank you for being open and willing to share your experiences. You are a blessing!

    • Hi Kimberly,
      Glad you found the blog, just knowing you are not alone is some help!
      With regard to boron, borax is the active form of boron, and seems to work better than just boron. Though some ladies in the fb group take it, but I do not know if they’ve achieved remission or not.

      Methotrexate is a frightening suggestion!!! The side-effects are horrible That really IS toxic!

      If you go the borax route, don’t forget to take the magnesium too.

      Do let me know how you get on.
      Best
      Ann

      • Hello Ann,
        Just a quick follow up and a few questions.
        1. When I make the cream solution have trouble getting the borax to dissolve. I get the coconut oil pretty hot and I stir it all the time as it is cooling down. The Borax still does not break down. Any pointers?
        2. Would you take 1/8 tsp in a liter of water for a longer period of time? I responded very well for the 16 days I did that stronger dose. But when I cut back to the 1 teaspoon in a liter of water and then using 1-2 teaspoons of that mixture per day I have had 2 flare ups in 2 weeks. Any thoughts on that?
        And thank you again for your help and pointing me in a much better direction. As a follow up after I finished the 16 day higher dose I was worried what my Dr. would say about going on the methotrexate. I was just finishing my 14th day when I visited her. She actually said, wow we are heading in the right direction, keep up the good work. I had not told her about my treatment with the borax yet. : ) Not quit sure when I will share that for now. Have a great day!

        • Hi Kimberley,
          Sorry for the delay, my email alert had failed !!
          Ok, I am so happy your doctor was pleased and didn’t suggest starting methotrexate!
          As for flare-up a on the maintenance dose here are some options I would suggest.
          1, maintenance dose, plus a borax bath at least one a week, preferably more often.* I’d certainly do this for the first 6 months anyway, the skin takes a long time to heal and get stronger.
          Or
          2, Higher maintenance dose, try 3-4 teaspoons of the maintenance dose (instead of just 1-2)
          Or
          3, (this I have seen some other ladies do, but have not done myself) continue the strong dose. (1/8 th teaspoon in 1 litre drunk over the day) But drink for 5 days , then 2 days with none.

          If your doctor likes the results further down the line. . .it would be good to be able to tell them what really helped . . .and it might help another woman later if your doctor can at least suggest bathing in it. . . Call it Sodium tetraborate (rather than just borax) and have some facts lined up (there’s some very good science been done lately on Borax. .. and the article Nothing boring about Boron is good!, link on my blog post)

          Please do let me know how you get on

          X Ann

          P.s. there’s always a few gritty bits, and I usually separate them as the coconut oil melts on my skin. When I get back I’m going to experiment with grinding the borax with a pestle and mortar before I add it. . . . I’ll let people know how I get on. .

    • Hi Pat.
      The borax is not a problem – it is a matter of how long it is ok to keep water in a fridge and still drink it. Well – bottled water in a store is in its bottle for a very long time…..
      Personally, I just keep using mine until it is just about gone – months and months!
      But if you are concerned at all – just ditch it and make a new batch – we are only talking a teaspoon of borax and a litre of water – not much to lose for peace of mind.
      Hope this helps
      X Ann

  17. Thank you for all the good information! I live in the US and was first diagnosed with oral Lichen Planus 2 yrs. ago. It was thought to have been brought on by a food allergy, stress, change in something else unknown. I was told it is autoimmune-which I believe, I see a Peridontist for the condition. He told me that it’s not that uncommon for post menopausal women…aha I’m pretty sure that’s the cause, not a food allergy. Then several months ago, I developed the condition that you talk about here. I associate it as the same problem, just in another location, and everything I’ve read sure mimics the symptoms of LS. I have tried the borax/pink salt combo and it really seems to help a lot! I was a little inconsistent those first 2 weeks, and then backed off even more after that. What a mistake….it came back just as fierce! I started over, and am on day 4 of the 2 week treatment. Also bought some magnesium today. I buy my borax from Walmart which is in the laundry section. I have also found a cream helpful, called Emuaid max. They have a website, or can be purchased on Amazon. When you have this condition and are desperate for relief, I think people will try about anything, and care less about whether this is clinically proven or recommended by a professional or research…thank you for sharing with others!

    • Hi Lisa,
      Sorry for the delay, I was away ad without internet. I’m glad you found my blog and that it has helped. The magnesium is very important. Do look at the LS and borax FB group I linked to at the end of the blog – it is good to know we are not alone.
      Best Ann

      • Ann- I just recently realized that when I stopped taking a menopausal supplement for hot flashes, this was about the same time the symptoms of LS developed. I have started taking a supplement again & it really seems to be helping without the Borax…however I have also found a tablet Boron supplement that I have been trying. Between the two, my symptoms are significantly less/manageable.

        • Hi Lisa, (sorry for the delay, email alert failed, then was travelling with out internet!)
          Menopause and LS are well linked, so it is not surprising, and often the supplements for hot flashes are a phyto-oestrogen and give your body enough oestrogen to have starved off the LS symptoms. I am glad you have found a combination that works for you. Anything to get rid of the terrible symptoms!
          X Ann

  18. Thank you for the wonderful information. I was diagnosed in late June but don’t have many of the symptoms (no itching, no white patches), mostly labial atrophy – which is scary enough. I chose not to use the clobestol that was prescribed, but started doing research. I tried the Perrins creams but didn’t notice great results. I made my own ‘cream’ with coconut oil, aloe vera juice, vitamin E oil, lavender and frankincense and have been using that topically along with bio identical estrogen. I have tried using the Borax and baking soda in the bath, but I don’t think I gave it much time. I’m seeing very slow progress in the reversal of this, but I’m praying that I just need to give it time. I’m thinking I might go all-in on the Borax protocol and see if I notice a difference.

    I wanted to mention that if people decide to supplement with Vitamin D3 (as you suggest and I agree with and do), they should consider adding Vitamin K2. Vitamin K2 releases a protein hormone called osteocalcin, which locks calcium into the structure of your bones. Without vitamin K2, calcium can end up getting deposited in ways that do more harm than good. Vitamin D3 combined with Vitamin K2 helps protects against cardiovascular calcification. Please don’t take my word for it. A quick web search on ‘Vitamins D3 and K2’ (I use DuckDuckGo for it’s great privacy and no tracking – no more Google for me) will point you in the right direction if you want more info.

    • Hi Cindy,
      Thank you for your comment.
      I agree vit K2 is important – but with a diet high in leafy greens, eggs and cheese (good sources of vit k2) I’ve felt ok about this… however, I think I will look into it a bit more especially as my oestrogen blockers make calcium depositing into bone more difficult. 🙁
      Do tell me if you find the borax protocol helps. Hope it does!:)
      best
      Ann

  19. This info has been a lifesaver! Borax to the rescue! I did go overboard in April using too much – borax bath, q-tips frequently during the day – and coconut oil. I ended up going to a new gyno – I told her what I had done – she gave me a funny look and said that it may be too acidic – and gave me a script for clobetasol.

    It does not work on the LS – but, I did find it helpful for the itching. I was travelling for two months and could not do the Borax treatments as often as I wanted to. I mixed up the borax solution, kept it in a squirt bottle, and used it on toilet paper every time I went to the bathroom – soaking the tissue and gently wiping the area affected. I used the coconut oil after the solution dried and then I stretched the skin…..gently. I’ve found that just using the borax alone did not keep the fusing at bay without using the q-tips to force the skin apart – but gently stretching the area by pushing down on either side of the labia brought back some of the fused area. If I skipped a day, things fused and flattened out again. The only problem is that coconut oil melts in the heat, so you cannot carry it in your purse – I havent found anything that matches it for lubrication – any suggestions?

    • Hi Pat,
      Sorry about the delay, my email alert failed! Then been travelling myself, without internet. . ..and yes, the coconut oil melts!! (Leaked out of pot, all over my other pots and stuff!) I’m wondering about putting it in a small squirt bottle for hot counties!
      Once a piece has unfused, I think it is essential to keep it oiled, so raw skin can’t touch raw skin. I have seen some recommend sudocrem (used for diaper / nappy rash) or zinc and castor-oil cream. This might work as they are thicker and more resistant to melting (but I haven’t checked out the other ingredients, personally I really don’t like the petroleum-based creams) when not in hot countries I would stick with coconut oil.
      X Ann
      P.s. for your Dr’s info. … Borax is alkaline. . . .. 🙂

  20. Hi Ann,
    What a lovely blog! Very informative and caring.
    I wish I had found it in 2008 when my LS symptoms first began. Like others I went to multiple practitioners, who prescribed the steroid cream, which caused thinning but didn’t stop the crazy itching and burning.
    After about a year of ceaselessly scouring the internet for more natural remedies, most of which didn’t work, I found an Oprah blog which recommended New Zealand Manuka Honey. I have been using that for 10 years now and it is great at both calming the itching and moisturizing. It is rather sticky of course, so I now only use it at night, and an herbal salve during the day.
    I’m going to try the borox bath to see if it does anything different. I no longer seem to be losing tissue, and would like to see if I can unfuse some of it.
    What a scourge this condition is! Glad that there is so much more information and awareness now. I also had other autoimmune issues which got solved through the AIP (auto immune Paleo) diet, but the LS didn’t seem to improve from that.
    Thanks for your help,
    Best,
    Suzanne

    • Hi Suzanne,
      (Sorry for the delay, email alert failed, then was travelling without internet access!)
      Thank you for your lovely comments. Back in 2008, I was still blissfully unaware of this horrible condition. . .but it was just around the corner waiting for me!And, yes, steroid cream. . .which also thins the skin! Huh!?
      AIP and paleo have helped ease some people’s LS,(mine too) but not got rid of the symptoms, borax does help a lot of us, I can only say, try it, try bathing and if that helps go further in the protocol.
      Do let me know how you get on.
      X
      Ann

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